Update
2021
Detail your services
Detail your services
Detail your services
If customers can’t find it, it doesn’t exist. Clearly list and describe the services you offer. Also, be sure to showcase a premium service.
Detail your services
Detail your services
Detail your services
If customers can’t find it, it doesn’t exist. Clearly list and describe the services you offer. Also, be sure to showcase a premium service.
Detail your services
Detail your services
Detail your services
If customers can’t find it, it doesn’t exist. Clearly list and describe the services you offer. Also, be sure to showcase a premium service.
Detail your services
Detail your services
Detail your services
If customers can’t find it, it doesn’t exist. Clearly list and describe the services you offer. Also, be sure to showcase a premium service.
Detail your services
Detail your services
Detail your services
If customers can’t find it, it doesn’t exist. Clearly list and describe the services you offer. Also, be sure to showcase a premium service.
Detail your services
Detail your services
Detail your services
If customers can’t find it, it doesn’t exist. Clearly list and describe the services you offer. Also, be sure to showcase a premium service.
FEBRUARY 9, 2021
FEBRUARY 9, 2021
FEBRUARY 9, 2021
Raspitory LTV , to check the Oxygen level
February 9, 2021
FEBRUARY 9, 2021
FEBRUARY 9, 2021
Back to Sick kids hospital, Baby Marcell did Physiotherapy assesment
February 8, 2021
FEBRUARY 9, 2021
February 8, 2021
Baby Marcell back at grand river health center for RSV prophylaxis, which is a medication called Synagis that helps to prevent the severe form of a respiratory virus called RSV
February 3, 2021
February 3, 2021
February 8, 2021
Baby Marcell is back staying at Sick Kids Hospital for overnight stays
JANUARY 14, 2021
February 3, 2021
JANUARY 14, 2021
Back at sick kids hospital today for the 4th Spinraza treatment.
JANUARY 7, 2021
February 3, 2021
JANUARY 14, 2021
At Holland Bloorview Neuromuscular Rehabilitation
2020
DECEMBER 28, 2020
DECEMBER 28, 2020
DECEMBER 28, 2020
at sick kids hospital for Chest X-ray for Raspitory Department
DECEMBER 22, 2020
DECEMBER 28, 2020
DECEMBER 28, 2020
Getting Echocardiogram at sick kids hospital.
DECEMBER 17, 2020
DECEMBER 28, 2020
DECEMBER 17, 2020
Getting ready for Spinraza Spinal Injections 3rd treatment with Spinraza.
DECEMBER 7, 2020
DECEMBER 3, 2020
DECEMBER 17, 2020
back at SickKids tonight
DECEMBER 3, 2020
DECEMBER 3, 2020
DECEMBER 3, 2020
Baby Marcell is back at sick kids hospital for 2nd Spinraza Spinal Injection Treatments, and blood work
NOVEMBER 20, 2020
DECEMBER 3, 2020
DECEMBER 3, 2020
At sick kids hospital for SPINRAZA - Nusinersen Injectable for the 1st time
NOVEMBER 15, 2020
NOVEMBER 15, 2020
NOVEMBER 15, 2020
Letter from Boston Hospital regarding estimate of fee, which only shown starting fee from and up to. plus other fee such hospital fee, evaluation fee, and other expenses and fee may occurs.
NOVEMBER 13, 2020
NOVEMBER 15, 2020
NOVEMBER 15, 2020
Had a zoom meeting with Boston Children's Hospital. Every hospital urgently expressed their concerns for SMA are the fight against time.as for my son he need to recieved Spinranza treatments ASAP, until I can raised money for Solgensma, the they so advice to continuing Spinranza treatments after Zolgensma. U.S. Hospital require to do assessment before they can start treatment for Solgensma. and once the assessment done they then would be able to send me the cost estimate, right now without the assessment they can only give me rough approximate cost of $2.52M to 2.89M USD. If i accept then U.S. hospital would require to pay total cost in full up front.
NOVEMBER 9, 2020
NOVEMBER 15, 2020
November 6, 2020:
Sick Kids Hospital Test - 2nd test Result
November 6, 2020:
November 6, 2020:
November 6, 2020:
Got phone call from sick kids hospital, confirmation of the 2nd blood test Marcellinus is positive SMA.
November 3, 2020
November 6, 2020:
November 3, 2020
At sick kids hospital in downtown Toronto, doing more tests. And hope to see some light at the end of the tunnel, but instead got more bad news regarding SMA.
19 october 2020
November 6, 2020:
November 3, 2020
Marcellinus Kornelius Muljarahardja was born at Brantford General Hospital
Help Our Cause
Your support and contributions will enable me to meet our goals and improve my conditions. Your generous donation will fund my life.
GoFundMe:
gofundme.com/f/cure-life-for-marcellinus-fighting-for-sma
E-Transfer: m.k.muljarahardja@gmail.com
Or Paypal Below:
Please Help Me
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- Fighting For Baby Marcel Health -
Alone we can only do so little; but together we can do so much more