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Baby Marcel

Baby MarcelBaby MarcelBaby Marcel

Marcellinus Kornelius Muljarahardja

Marcellinus Kornelius MuljarahardjaMarcellinus Kornelius Muljarahardja

Update

2021

Detail your services

Detail your services

Detail your services

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If customers can’t find it, it doesn’t exist. Clearly list and describe the services you offer. Also, be sure to showcase a premium service.

Detail your services

Detail your services

Detail your services

image664

If customers can’t find it, it doesn’t exist. Clearly list and describe the services you offer. Also, be sure to showcase a premium service.

Detail your services

Detail your services

Detail your services

image665

If customers can’t find it, it doesn’t exist. Clearly list and describe the services you offer. Also, be sure to showcase a premium service.

Detail your services

Detail your services

Detail your services

image666

If customers can’t find it, it doesn’t exist. Clearly list and describe the services you offer. Also, be sure to showcase a premium service.

Detail your services

Detail your services

Detail your services

image667

If customers can’t find it, it doesn’t exist. Clearly list and describe the services you offer. Also, be sure to showcase a premium service.

Detail your services

Detail your services

Detail your services

image668

If customers can’t find it, it doesn’t exist. Clearly list and describe the services you offer. Also, be sure to showcase a premium service.

FEBRUARY 9, 2021

FEBRUARY 9, 2021

FEBRUARY 9, 2021

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Raspitory LTV , to check the Oxygen level 

February 9, 2021

FEBRUARY 9, 2021

FEBRUARY 9, 2021

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Back to Sick kids hospital, Baby Marcell did Physiotherapy assesment

February 8, 2021

FEBRUARY 9, 2021

February 8, 2021

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Baby Marcell back at grand river health center for RSV prophylaxis, which is a medication called Synagis that helps to prevent the severe form of a respiratory virus called RSV 

February 3, 2021

February 3, 2021

February 8, 2021

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 Baby Marcell is back staying at Sick Kids Hospital for overnight stays 

JANUARY 14, 2021

February 3, 2021

JANUARY 14, 2021

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 Back at sick kids hospital today for the 4th Spinraza treatment. 

JANUARY 7, 2021

February 3, 2021

JANUARY 14, 2021

At Holland Bloorview Neuromuscular Rehabilitation

 At Holland Bloorview Neuromuscular Rehabilitation 

2020

DECEMBER 28, 2020

DECEMBER 28, 2020

DECEMBER 28, 2020

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 at sick kids hospital for Chest X-ray for Raspitory Department 

DECEMBER 22, 2020

DECEMBER 28, 2020

DECEMBER 28, 2020

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Getting Echocardiogram at sick kids hospital. 

DECEMBER 17, 2020

DECEMBER 28, 2020

DECEMBER 17, 2020

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Getting ready for Spinraza Spinal Injections 3rd treatment with Spinraza.

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DECEMBER 7, 2020

DECEMBER 3, 2020

DECEMBER 17, 2020

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back at SickKids tonight

  •  

DECEMBER 3, 2020

DECEMBER 3, 2020

DECEMBER 3, 2020

Baby Marcell is back at sick kids hospital for 2nd Spinraza Spinal Injection Treatments, and blood w

  Baby Marcell is back at sick kids hospital for 2nd Spinraza Spinal Injection Treatments, and blood work   

NOVEMBER 20, 2020

DECEMBER 3, 2020

DECEMBER 3, 2020

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 At sick kids hospital for SPINRAZA - Nusinersen Injectable for the 1st time 

NOVEMBER 15, 2020

NOVEMBER 15, 2020

NOVEMBER 15, 2020

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 Letter from Boston Hospital regarding estimate of fee, which only shown starting fee from and up to. plus other fee such hospital fee, evaluation fee, and other expenses and fee may occurs. 

NOVEMBER 13, 2020

NOVEMBER 15, 2020

NOVEMBER 15, 2020

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 Had a zoom meeting with Boston Children's Hospital. Every hospital urgently expressed their concerns for SMA are the fight against time.as for my son he need to recieved Spinranza treatments ASAP, until I can raised money for Solgensma, the they so advice to continuing Spinranza treatments after Zolgensma. U.S. Hospital require to do assessment before they can start treatment for Solgensma. and once the assessment done they then would be able to send me the cost estimate, right now without the assessment they can only give me rough approximate cost of $2.52M to 2.89M USD. If i accept then U.S. hospital would require to pay total cost in full up front. 

NOVEMBER 9, 2020

NOVEMBER 15, 2020

November 6, 2020:

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 Sick Kids Hospital Test - 2nd test Result

November 6, 2020:

November 6, 2020:

November 6, 2020:

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Got phone call from sick kids hospital, confirmation of the 2nd blood test Marcellinus is positive SMA. 

November 3, 2020

November 6, 2020:

November 3, 2020

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At sick kids hospital in downtown Toronto, doing more tests. And hope to see some light at the end of the tunnel, but instead got more bad news regarding SMA.

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19 october 2020

November 6, 2020:

November 3, 2020

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Marcellinus Kornelius Muljarahardja was born at Brantford General Hospital

Support Baby Marcell

Help Our Cause

Your support and contributions will enable me to meet our goals and improve my conditions. Your generous donation will fund my life.


GoFundMe:

gofundme.com/f/cure-life-for-marcellinus-fighting-for-sma


E-Transfer: m.k.muljarahardja@gmail.com


Or Paypal Below:  

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Baby Marcel

gofundme.com/f/cure-life-for-marcellinus-fighting-for-sma

Copyright © 2021 Baby Marcell - All Rights Reserved.

www.babymarcell.ca

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